Chronic Health Conditions Discussion and Support
In reply to the discussion: I was just diagnosed with Parkinson's disease. [View all]Easterncedar
(3,524 posts)Be kind to yourself as much as you can.
The best online support community I know is based in the UK - healthunlocked.com. It provides community support for all kinds of movement disorders. It was a lifesaver for me when my beloved sweetheart was diagnosed with a rare neurological disease often misdiagnosed as Parkinsons. There are people there from all over the world, so someone is usually awake when you are! It has great information and links to more. It has people who are navigating this just as you are. I made real friends there.
We had good results from two physical therapy programs. If you can find a therapist certified in LSVT Big (for movement) or LSVT Loud (for speech), I recommend getting started on these or whatever other physical therapy you might like as soon as you feel ready. Your doctor should be able to help with that. There are online resources for them, too. We saw wonderful results with them and I liked doing the exercises along with my guy at home.
Its a lot to take in, but please be encouraged; you are not alone with this, and there are advances in treatment being developed all the time. Hang on!
I am glad you reached out. Good first step! Best wishes