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Chronic Health Conditions Discussion and Support

Thinkingabout

(30,058 posts)

3. They have only been approved by FDA but they are expensive, $2500 a shot but settle for $1300.

Reply to auntAgonist (Reply #2)

Mon Jun 23, 2014, 08:16 AM

Jun 2014

They are weekly and without insurance would have been impossible. I don't understand why I have the lows and it occurs about every four months. I have not been on prednisone because of diabetes. Seems like I live at the clinic with weekly blood test and injections. When your count is low do you hurt almost like the flu and very tired?

Thanks for your response.

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Idiopathic thrombocytopenic purpura [View all] Thinkingabout Jun 2014 OP

I had/have it .Back in 2001 NCarolinawoman Jun 2014 #1

Did your platelet go up and stay up after spleen was removed? Thinkingabout Jun 2014 #4

Yes, my platelets went up after splenectomy. NCarolinawoman Jun 2014 #7

I had / have it ITP for short. Back in '77 I was diagnosed after auntAgonist Jun 2014 #2

They have only been approved by FDA but they are expensive, $2500 a shot but settle for $1300. Thinkingabout Jun 2014 #3

Tired, yes. Flu-like ... no, I don't have that symptom at all. n/t auntAgonist Jun 2014 #5

I have joint pain. Thinkingabout Jun 2014 #6

I am currently experiencing a lot of joint pain especially in my lower body auntAgonist Jun 2014 #8

Have you been tested for lupus? marybourg Jul 2014 #9

Yes and test was negative. Thinkingabout Jul 2014 #10

My daughter was diagnosed with this in the mid 1990's. hamsterjill Jul 2014 #11

Thanks for your reply. For younger folks it can go into remission but I'm older and it Thinkingabout Jul 2014 #12