Chronic Health Conditions Discussion and Support

auntAgonist

(17,258 posts)

2. I had / have it ITP for short. Back in '77 I was diagnosed after

Mon Jun 23, 2014, 07:46 AM

Jun 2014

finding bruises all over my body and a menstrual bleed that would not stop. I saw my OB/GYN and he ordered a D&C. I went for pre-op day surgery bloodwork and that's when it was discovered that my platelets were very low. It was so long ago I can't remember what the count was, if I ever knew.

Long story short, prednisone only made me sick. I gained 60 lbs in a very short time and the headaches were unbearable.
The hematologist that was overseeing my situation recommended a splenectomy.
I did get infection after surgery and was very ill for about 6 weeks.

I now have the reverse issue. My platelets tend to run high. Not in the danger zone but my Dr does monitor the numbers.

I don't think that injections were an option back in '77.

Good luck to you.

aA

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Idiopathic thrombocytopenic purpura [View all] Thinkingabout Jun 2014 OP

I had/have it .Back in 2001 NCarolinawoman Jun 2014 #1

Did your platelet go up and stay up after spleen was removed? Thinkingabout Jun 2014 #4

Yes, my platelets went up after splenectomy. NCarolinawoman Jun 2014 #7

I had / have it ITP for short. Back in '77 I was diagnosed after auntAgonist Jun 2014 #2

They have only been approved by FDA but they are expensive, $2500 a shot but settle for $1300. Thinkingabout Jun 2014 #3

Tired, yes. Flu-like ... no, I don't have that symptom at all. n/t auntAgonist Jun 2014 #5

I have joint pain. Thinkingabout Jun 2014 #6

I am currently experiencing a lot of joint pain especially in my lower body auntAgonist Jun 2014 #8

Have you been tested for lupus? marybourg Jul 2014 #9

Yes and test was negative. Thinkingabout Jul 2014 #10

My daughter was diagnosed with this in the mid 1990's. hamsterjill Jul 2014 #11

Thanks for your reply. For younger folks it can go into remission but I'm older and it Thinkingabout Jul 2014 #12