Chronic Health Conditions Discussion and Support

NCarolinawoman

(2,825 posts)

1. I had/have it .Back in 2001

Mon Jun 23, 2014, 12:00 AM

Jun 2014

Platelets down to 10,000. Was put on a very high pregnasone dosage. Felt like that drug was killing me. Essentially it killed off my spleen and then it was removed. They went ahead with the splenectomy after my platelet count went up to 80,000. Found out later that my surgeon was reluctant but went ahead.

Survived surgery but got an infection. I was given big fat dose of Cypro. Saved my life but it left me with tendinitis and peripheral neuropathy. Always be aware that Cypro has a black box warning concerning neuropathy.

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Idiopathic thrombocytopenic purpura [View all] Thinkingabout Jun 2014 OP

I had/have it .Back in 2001 NCarolinawoman Jun 2014 #1

Did your platelet go up and stay up after spleen was removed? Thinkingabout Jun 2014 #4

Yes, my platelets went up after splenectomy. NCarolinawoman Jun 2014 #7

I had / have it ITP for short. Back in '77 I was diagnosed after auntAgonist Jun 2014 #2

They have only been approved by FDA but they are expensive, $2500 a shot but settle for $1300. Thinkingabout Jun 2014 #3

Tired, yes. Flu-like ... no, I don't have that symptom at all. n/t auntAgonist Jun 2014 #5

I have joint pain. Thinkingabout Jun 2014 #6

I am currently experiencing a lot of joint pain especially in my lower body auntAgonist Jun 2014 #8

Have you been tested for lupus? marybourg Jul 2014 #9

Yes and test was negative. Thinkingabout Jul 2014 #10

My daughter was diagnosed with this in the mid 1990's. hamsterjill Jul 2014 #11

Thanks for your reply. For younger folks it can go into remission but I'm older and it Thinkingabout Jul 2014 #12