Anybody get through 35 radiation treatments for tongue/palate SCC HPV-16 type?

[TNNurse]

10. This sounds absolutely miserable.

I had breast cancer and only 5 treatments each 3 weeks apart. I lost 50 lbs, painful diarrhea, passed out in the bathroom and got a ride in an ambulance for IV fluids. By blood pressure was 60...the top number. After the 3rd dose I was literally afraid another one might kill me. I would not eat because the diarrhea was so painful.

None of this sounds as bad as what you are going through. Yes, I needed and used Magic Mouthwash. I did also have radiation burns but clearly not as awful.

I wish I could say it will get better and you will be OK but yours is such a different experience. I hope you have the support that I did. Are there other patients near you who can share a similar experience??? It does help.

Please know how many people who have not met you are thinking about you and hope to hear from you. Even if you just want to bitch and moan we will read it.

I tell people that I have been the recipient of "thoughts and prayers", they did not cure me, but they did bring comfort. Surgery, chemo and radiation cured me. But knowing people care does help.