Welcome to DU! The truly grassroots left-of-center political community where regular people, not algorithms, drive the discussions and set the standards. Join the community: Create a free account Support DU (and get rid of ads!): Become a Star Member Latest Breaking News Editorials & Other Articles General Discussion The DU Lounge All Forums Issue Forums Culture Forums Alliance Forums Region Forums Support Forums Help & Search

Cancer Support

Showing Original Post only (View all)

wiley

(2,921 posts)
Sat Apr 14, 2018, 04:03 AM Apr 2018

Anybody get through 35 radiation treatments for tongue/palate SCC HPV-16 type? [View all]

Treatment 17. They keep telling me that side effects will get worse. Just to warn me. This already sucks very, very badly. Uncontrollable mouth sores that blister, pop and bleed. The pain is so bad I scream and am constantly crying. I pull thick rope like threads of blood and mucous out of my throat because I can't spit. They say it's all normal.

have no idea how anyone gets through this. Would have been nice if the told me NOT to use Aquaphor hours before treatment. Cause a serious rash and INCREASED radiation intake. I'm going through a bottle of Lidocaine daily, and docs said triple the pain meds. I can't even swallow water. So after each treatment they give me an IV and a two hour water infusion through the tube.

Not sure I will get through four more weeks of this. I can't sleep either. Or think!

Medicare approved my formula and syringes though! I add several tablespoons of avocado oil to and four TB of honey (not raw) to each can to get them to 950 calories each. 325 + 240 + 390 Mix really welleven warm up if necessarythen infuse slowly over a 45 minute period. The 500 mil warm water.

This week I'm going to nail the oncologists on exactly what criteria he uses to say I'm responding well.

21 replies = new reply since forum marked as read
Highlight: NoneDon't highlight anything 5 newestHighlight 5 most recent replies
So sorry. PoindexterOglethorpe Apr 2018 #1
Deeply sorry for your hell on Earth! Hoping all of your treatments are democratisphere Apr 2018 #2
Oh, Wiley, that sounds horrible. Laffy Kat Apr 2018 #3
Oh, wow. I'm so sorry. Mouth cancer here, but nothing like that. Solly Mack Apr 2018 #4
I'm so sorry to hear this. JNelson6563 Apr 2018 #5
i've heard the treatment can be worse than the disease, barbtries Apr 2018 #6
We're pulling for you, Wiley! bucolic_frolic Apr 2018 #7
You will persist and you will triumph. . . . . . nt Bernardo de La Paz Apr 2018 #8
Willey, my husband did it 4 years ago. Silver Gaia Apr 2018 #9
This sounds absolutely miserable. TNNurse Apr 2018 #10
Magic Mouthwash is so good, and later use Mouth Kote. alfredo Apr 2018 #17
Hey man. I dont have any useful information but want to reach out and send you some aloha and mahina Apr 2018 #11
Music helped me through the ordeal. alfredo Apr 2018 #16
I am so very sorry! GreenPartyVoter Apr 2018 #12
I'm so sorry. Yes, I was scheduled for 35 radiation treatments for sinkingfeeling Apr 2018 #13
Finished Treatment 22! wiley Apr 2018 #21
Throwing some adages your way packman Apr 2018 #14
Damn! sorry to hear you are having such a tough time. alfredo Apr 2018 #15
So sorry. Get out your pain and frustration and fear by crying whenever applegrove Apr 2018 #18
It does sound like hell PennyK Apr 2018 #19
OMG you people are so wonderful! wiley Apr 2018 #20
Latest Discussions»Support Forums»Cancer Support»Anybody get through 35 ra...»Reply #0