Anybody get through 35 radiation treatments for tongue/palate SCC HPV-16 type?

[wiley]

Treatment 17. They keep telling me that side effects will get worse. Just to warn me. This already sucks very, very badly. Uncontrollable mouth sores that blister, pop and bleed. The pain is so bad I scream and am constantly crying. I pull thick rope like threads of blood and mucous out of my throat because I can't spit. They say it's all normal.

have no idea how anyone gets through this. Would have been nice if the told me NOT to use Aquaphor hours before treatment. Cause a serious rash and INCREASED radiation intake. I'm going through a bottle of Lidocaine daily, and docs said triple the pain meds. I can't even swallow water. So after each treatment they give me an IV and a two hour water infusion through the tube.

Not sure I will get through four more weeks of this. I can't sleep either. Or think!

Medicare approved my formula and syringes though! I add several tablespoons of avocado oil to and four TB of honey (not raw) to each can to get them to 950 calories each. 325 + 240 + 390 Mix really welleven warm up if necessarythen infuse slowly over a 45 minute period. The 500 mil warm water.

This week I'm going to nail the oncologists on exactly what criteria he uses to say I'm responding well.