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slipslidingaway

(21,210 posts)
6. No and sorry to mislead, I will not be frequenting this site as often and wanted to wish everyone ..
Tue Jun 14, 2016, 12:12 AM
Jun 2016

the best outcome possible!!!

One step at a time

We had a six plus hour lunch in NYC yesterday with people we met at Hope Lodge in NYC last year, they live in Florida and spent 21 months in NYC, bouncing between Columbia, Sloan, ultimately Cornell who did her transplant.

She is doing wonderful and her check up today with the transplant doc went great. This might all be Greek to some (each cancer has unique characteristics that we cannot understand) but she had a haplo (basically a half match/sibling/parent) and one baby cord at Cornell.

Normally when you have a haplo and cord/or cords transplant they look for the cord to take over, but the cord failed in this instance and the haplo (her brother) took over.

Long story short, and not the normal outcome, but so far so good and not the worst outcome IMHO. If the transplant begins to fail her brother can still give additional cells. If the cord fails it is more difficult because you need to introduce another immune system into the mix, it becomes very complicated.

We keep in touch with three couples from my husband's two transplants, one person has not survived

This is all interesting, but wish we had no knowledge of leukemia and rare lymphomas.

Science is advancing, in the bone marrow transplant world, we are very much guinea pigs, as with other cancers, we are all on one trial or another.

But we march forward.

So best of luck to all!!!!







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