and to put it mildly this sucks. We found out that he has unfavorable mutation, was this there four years ago and the tests are just more sensitive today? The transplant doc raised this question ... the science is moving rapidly.
I often wonder how I would react if I were the patient instead of the caregiver? Would I have the fortitude to go through this again???
They did not do the biopsy last week as his marrow was in full recovery mode, platelets over 800 and other signs ... so they would not get an accurate reading. The doc said this was not necessarily a sign of remission, just that the marrow needed to calm down a little before getting an true a reading, so we go back next week to see where things stand. They moved the readmission date to 12/24, but we'll just have to see what the biopsy says as that could change. Being lucky means he'll be admitted Christmas Eve, hope I'm not jinxing things!
In the meantime we have had a great holiday weekend with family and friends, with a WBC In the 8's from 0.1 two weeks ago the doc said he could enjoy going out have some 'good' wine, in moderation, over the holidays. Do it while you can, every day counts.
Continue to take those steps day by day, it is hard stepping out, but it is so important!
Mind over matter .... Happy three months!!!
Thanks 
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