Elder-caregivers
Related: About this forumToday's funny: Cable Confabulation
My grandmother will not be getting cable. Given her problems with attention span, short-term memory, executive function and impulse control, the second worst thing for her is TV programming that runs on a 7 minute program, 2.5 minutes of commercials schedule, and the absolute worst thing for her are 23 minute commercials disguised as programs with 7 minutes of actual commercials. I've seen her with commercial television -- it ain't pretty. (The Food network and Paula Deen are responsible for the 4 years of 200-500 blood sugar readings and needing insulin. Without those, and her own kitchen, she's a rock-solid 100 without insulin.)
She has a roku and all of the benefits of Netflix, Amazon, hulu+, et cetera. It's got a lovely, simple, sturdy remote and limited to no commercials. The downside of the roku is that she has to be an active viewer and make decisions about what she wants to watch instead of letting the goddam noisy box decide for her, but that's to her advantage.
Today, the maintenance guy at her ALF asked me to sign off on her cable box. What cable box? I asked. Neurologically, I'd rather she took heroin or started her day with a big Bloody Mary. He says that she told him my mother arranged for cable for her. Uh, no, sez I, my mother would never do that without involving me, and Mom agrees that Gran+cable is a bad! bad! bad! idea. (Also, local cable company is comcast, and good lord, can you imagine trying to shut that down when the inevitable happens? 35 minutes of "She's DEAD," and "But we have the fastest speed! What's the new address? Would you like to add HBO?" Insert RAGE face here.)
Maintenance Guy and I agree that there is no cable order, that there is no incoming cable, that the box is a fantasy, and any blowback belongs on me, not him. Then I go talk to Gran. Who has convinced herself that Mom set up cable for her. So we call Mom. Who is trying hard not to laugh in my Gran's ear as she says, no, I did not, and no, you cannot have cable, and if you want your Days of Your Lives, you can trundle your butt 100 feet down the hall to the TV room and watch it with the 4 other ladies who are DOYL fans. Which is where the pouts start -- yep, imagine a thwarted 4 year old. But I WAAAAANT cable.
Tough, sez we. And I want a pony, sez I, and I want a pool, sez Mom. Note that we're not whining. (These are normal family dynamics for us, ritual phrases for whinging.)
Pouts continue. Mom sez, you have the internet and a phone. Figure out how to set it up yourself. Do the legwork. (There is no risk in this actually happening; see above about memory and motivation. But if it does, then yes, dammit, I will happily sign the checks for a cable-like substitute, and lock out all of the shopping, Fundy, Faux and DIY channels. Because standards, we has them, and independence and rebellion, we likes it.)
Mom gets off phone, I tell Gran that if she can make it 60 days without falling, we'll talk cable (actually, Xfinity, because Centurylink is better behaved than Comcast, but the difference is measured in gnat's wings.) We go about our business, and ten minutes later, she says, "But why can't I have cable? I did all the legwork. I arranged it!"
"Uh, no, you lied to Maintenance Guy and you just made that up. 60 days. You're on day 5. And trundle your butt down to the TV room and watch it on the big screen with everyone else. 2 PM, channel 13." And I write that on the reminder board.
We'll see if it happens, or if the whinge continues.
The internal head stories are amazing. Dementia is sucktastic, and yet way too funny sometimes.
littlemissmartypants
(25,496 posts)Sucktastic is my new favorite word in adult circles. Mother has not been herself since 2007. Coincidentally, changes began with the last year she wrote Christmas cards. I miss her though she is still alive. Dementia. It can make you sad.
politicat
(9,810 posts)It's the hardest part, for me. Seeing a body that housed a difficult, snarky, sharp mind and not seeing that anymore.
Do you get the glimpses? The right music or food will bring it out sometimes. Though that makes it harder when the trick doesn't work...
littlemissmartypants
(25,496 posts)Seriously, I could see her using her quad cane as a weapon. If she can remember where she put it. She didn't like the wrist strap I got for her to help her keep it with her. Agitation. She never used to be rude. Now she is borderline hard to handle.
littlemissmartypants
(25,496 posts)How we wear our hair and certainly not on our access to cable television. Occupation of time and money become a balancing act however. Priorities shift.
politicat
(9,810 posts)In a lot of ways, TV is both a carrot and stick. Because Gran's version of dementia took away the circuit between "I want to do $Action" and doing $Action, she has limited to negative motivation and self-regulation. Without prompts, she won't do anything at all (though great-and-wonderful Oz, she will complain about being bored...). My job as her responsible party is not to make her decisions for her (except when necessary or those beyond her abilities) but to provide her with the tools to re-route around that failed circuit. While her ability to learn is limited now, I actually enjoy seeing the attempts at rerouting, which her confabulation was. She wants something. She is trying to find ways to make it happen, even of those means are unworkable. We have given her a route to obtaining her goals and the tools to make that possible. She has moderate dementia, not profound, so she needs to maximize what she has as long as she has it. And that means working on problems, not just expecting change without articulating and working it.
This may be the motivation for working on something she hasn't managed yet -- 1) making phone calls (in six months, she has not made any call at all); 2) being vigilant about her walker and watching her sit/stand protocol; and 3) engaging with the community. Or not.