HIV/AIDS Support
Related: About this forumAnyone here have a vitamin D deficiency?
I have been battling this problem for awhile now and my Doctor told me it because of my HIV. They are doing research on it to find out why this is happening to HIV positive people but nothing conclusive yet. I am even taking a prescription vitamin D to no avail.
Anyone else experiencing this?
w8liftinglady
(23,278 posts)I had D deficiency with Lupus. Also required 2 replacement therapies with prescription vit d.Glad you're on top of it.Don't let them pull the "replace it with diet" bullshit.
DevonRex
(22,541 posts)I don't have HIV. But I do have CVID, common variable immune deficiency. It's not common, it's just a catchall diagnosis that describes 6 different types of rare to extremely rare immune deficiencies.
So I'm thinking there might be a link somewhere. I take Rx vitamin D and the numbers have improved a bit. Remarkably, I can actually feel the difference when I forget to take it for a couple of days. I have more energy when I'm on it. Not a lot, but certainly more than I had before.
I'm really bad about taking medications, so I've certainly had enough experience on it and off of it. I do inject my Hizentra every day, though. Can't forget that.
HillbillyBob
(3,208 posts)I was diagnosed with diabetes and very low (9) last week. I am start star a prescription tomorrow.
William769
(55,815 posts)Ecumenist
(6,086 posts)was REAL low, (4). In the process of taken Rx D3 and hoping that my counts will be up at testing in June.
William769
(55,815 posts)Please let us know how you are doing.
BigDemVoter
(4,541 posts)taking prescription drug as well, but still very low
Neoma
(10,039 posts)I'm not HIV/Aids positive, but I think this deficiency is common.
Working in an office with no sunlight, or if anyone is like me, using their house as a cave to play videogames or to read in, you're just gonna have problems.
William769
(55,815 posts)I do live in the sunshine State.
The problem here is HIV medicine is causing our deficiency. We are on this medicine for life, it's not like we can correct this problem with a easy solution of just going outside.
My condition has gotten to the point I am going in for weekly shots to try to boost my vitamin D.
Neoma
(10,039 posts)Except with me, it's B-12 shots because my digestive system doesn't absorb it, and bipolar II/endometriosis meds.
I doubt there will ever be a "cure" for bipolar. But for HIV/Aids, I can see it happening someday.
You know the speech. "Well, we can't cure it, but we can manage it."