I'm actually unsure if this belongs here or not, but I've been suffering from seizures since the end of '06

[sakabatou]

This is due to a TBI from either a bacteria or virus. I've been on different medications throughout this time. The ones which I've been on the longest mostly work (along with other meds), but I've had full body seizures which have broken through.

It's... scary when I have them (the large ones): a lapse in memory and uncontrolled movement of my body. I only know when I've had one when someone else has told me. However, I've had smaller versions, usually affect anything from just my eyesight to my limbs, but I'm still awake.

The good thing is that I have people around me to help when I have them. The bad thing is I'm unable to travel far. Hell, I'm unsure if I can go outside my city. This has affected what I can do, usually events with my family, but it's also put some strain on my relationship with my girlfriend (it's long distance).

Most days, I'm fine. Other days, I'm frustrated by what I can't do. At least I have the internet and DU. If you wanna know more detail, send a PM.

[LoisB]

1. Goodness. I am sorry to hear that. Hopefully, there is or will be a medication that will completely

control them. Hugs.

[sakabatou]

5. I hope so too, but no medication has even touched the small ones I have

The big ones are almost controlled (2 or 3 a year).

[Dear_Prudence]

2. Take care

You are living with some very serious challenges. I am glad you have people around you. I also enjoy the internet and DU. Plus, our public library has audio books that can be entertaining, inspirational, or just relaxing. I listen to them on my Android phone. I wish you all the best.

[sakabatou]

6. I have a subscription to Audible, so that helps.

Plus music playlists.

[sunnybrook]

3. How frequent are the seizures

I also have epilepsy. For over 40 years. I also have both types although it started more with the grand mal seizures that were nocturnal. For me meds helped. I have in recent years gone a great amount of time without the grand mal, whereas I used to have them frequently. You are more vulnerable to them if run down or tired.

Anyway I hope your medical team is able to help you get them under control. It sounds like they are extremely disruptive to your daily life. I hope they can find a medication that controls the seizures with minimal side effects.

[sakabatou]

7. The small ones are daily, the big ones are two to three a year

[mopinko]

4. i'm so sorry to hear this.

it can b such a crap shoot. i dont know if it wd help, but i know re psyche meds, there is dna testing that can narrow it down.
is mmj legal where u r? i know it’s helpful for some ppl.

best of luck. it’s a scary disease. i had it after a head injury as a kid and was never dx’d. my youngest had the same, but it hung on for them. took 15 yrs to figure it out, but only after a dx of ptsd. they had a hard time finding the right meds.
the therapy for ptsd is rly inappropriate for someone who doesnt have it. did a lot of damage.

hang in there.

[sakabatou]

8. Let me think

I've never used psych meds, unless it was for misdiagnosed GAD*, nor weed (though it's legal here).

*Generalized Anxiety Disorder

[mopinko]

9. a lot of epilepsy meds r also psyche meds.

not sure how many of them r prescribed for both, but i know a couple bp drugs were developed for epilepsy.

[sakabatou]

11. AFAIK, none of the meds I take for epilepsy are psych meds

[mopinko]

13. well, it's possible a pharma dna test wd still help.

i dont actually know what all they test for.

[XanaDUer2]

10. I'm sorry

Sounds challenging.

[sakabatou]

12. It's more annoying than challenging.

The challenging part is when the medium to big ones hit.

[scipan]

14. I knew someone who had the big ones

He had a beautiful guide dog that was always there and could sense when one was coming on, so he could prepare himself.

[sakabatou]

15. I usually have auras before I have one, but sometimes, there's nothing