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Alan_Silverman

(24 posts)
Mon Nov 8, 2021, 03:28 PM Nov 2021

Fibromyalgia FM/a Test Scandal

Selling Certainty

This is a long well researched article on fibromyalgia and Dr. Bruce Gillis' FM/a test advertised on SiriusXM. Dr. Gillis claimed to the associated with the Faustman Lab at Mass. General Hospital. I called the lab and asked about the test and was told that Dr. Gillis was not associated with the lab. I sent this information to a reporter I knew and that eventually became this article in STAT magazine. At the end in the comment section I tell how I became involved.

I have three autoimmune diseases, fibromyalgia, crohn's and restless leg syndrome. They are mostly under control.

Good luck and best regards,

Alan
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Fibromyalgia FM/a Test Scandal (Original Post) Alan_Silverman Nov 2021 OP
Nice work, Alan Wicked Blue Nov 2021 #1
thanks Alan_Silverman Nov 2021 #3
Snake oil salesmen everywhere. Duppers Nov 2021 #2
Bless you Alan_Silverman Nov 2021 #4

Wicked Blue

(6,646 posts)
1. Nice work, Alan
Mon Nov 8, 2021, 04:20 PM
Nov 2021

Sorry to hear that you have fibro and two other autoimmune diseases.

I've had fibromyalgia for many years. I began taking duloxetine for a different problem and found that it keeps the pain level down, except when there's too much stress. It's not a cure, and doesn't do much for fatigue.

Let's hope someone comes up with a cure before too long.

Alan_Silverman

(24 posts)
3. thanks
Tue Nov 9, 2021, 09:30 AM
Nov 2021

It can be terrible. I've got most of it in hand lately.
If you know any other fibro sufferers who might sign up for this test (It costs $1000) please let them know.
Good luck,
Al

Duppers

(28,246 posts)
2. Snake oil salesmen everywhere.
Mon Nov 8, 2021, 10:18 PM
Nov 2021

Thnx for posting this.
Wishing you continued good luck.

- CFIDS suffer here

Alan_Silverman

(24 posts)
4. Bless you
Tue Nov 9, 2021, 09:33 AM
Nov 2021

At times I get very tired and foggy.
If you know any fibromyalgia sufferers who might buy this test (it costs $1000) let them know.
Thanks and good luck,
Alan

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