Anyone else here with a primary immunodeficiency?

[DevonRex]

Anyone else on Hizentra?

[MedicalAdmin]

1. Not me.

Is everything OK?

[DevonRex]

2. Sort of. But

ive been wondering about all the weight I've lost. Whether its because of the disease or the treatment.

Still I'm better now that I've been diagnosed and take daily immunoglobulin treatment. Thanks.

[MedicalAdmin]

3. Good news.

I hope your day is a good one.

[tpsbmam]

4. I wasn't familiar with it so I just went and read an NIH booklet

http://www.nichd.nih.gov/publications/pubs/primary_immuno.cfm

Wow, scary. I have chronic renal failure so I experience a very tiny amount of what it sounds like you may experience on a regular basis. Renal failure (chronic, acute, total~dialysis) suppresses the immune system. I was always one of those people who was hale and hearty while others around me were dropping like flies from colds, flus, etc. Now I pick up everything -- I'm pretty much sick all winter, despite copious hand washing & sanitizing. But that sounds like a VERY small aspect of primary immunodeficiency, which can (among other things) turn into some serious autoimmune conditions.

Have you been dealing with this since you were a kid? I can imagine that would be tough on any kid -- you just want to be "normal" and be able to do all your friends do when you're a kid!