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onethatcares

(16,571 posts)
Sat Dec 2, 2023, 04:48 PM Dec 2023

Carcenoma of an unknown primary

has anyone had experience with this form of evil?

My wife was diagnosed with it on Oct 7 this year. She is a survivor of 9 years from cholangial carcenoma and we thought she was in the clear until she hit this wall.
What I've been reading doesn't really fill me with hope and I need a bit of conversation concerning it.

thank you for anything you can offer.

7 replies = new reply since forum marked as read
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Carcenoma of an unknown primary (Original Post) onethatcares Dec 2023 OP
All I can offer is hugs and vibes for best possible outcome. Your DU family niyad Dec 2023 #1
Hugs. All the healing vibes her way. onecaliberal Dec 2023 #2
I don't, but I'm sorry XanaDUer2 Dec 2023 #3
I don't really know anything about her cancer, but the NIH might be helpful. Lonestarblue Dec 2023 #4
So sorry that you and your wife are faced with this now. Desert grandma Dec 2023 #5
MD Anderson as long as you pay before you see a doctor... raising2moredems Dec 2023 #6
MD Anderson and other centers of excellence Desert grandma Dec 2023 #7

niyad

(119,930 posts)
1. All I can offer is hugs and vibes for best possible outcome. Your DU family
Sat Dec 2, 2023, 04:58 PM
Dec 2023

is here for both of you. Lean as hard as yiu need.

Lonestarblue

(11,827 posts)
4. I don't really know anything about her cancer, but the NIH might be helpful.
Sat Dec 2, 2023, 05:16 PM
Dec 2023

The National Institutes of Health conducts a lot of research on cancer treatments and other diseases. Other sources of cutting-edge research are Sloan-Kettering in New York and MD Anderson in Houston. The Midwest has the Mayo Clinic and the Cleveland Clinic.

Any type of carcinoma is serious, and a second opinion on both diagnosis and plan of treatment is helpful. Perhaps your wife’s doctors will be willing yo help you get an appointment as soon as possible.

Wishing you and your wife the best.

Desert grandma

(1,053 posts)
5. So sorry that you and your wife are faced with this now.
Sat Dec 2, 2023, 05:17 PM
Dec 2023

Any chance you can get a second opinion at MD Anderson or Mayo Clinic, or some other renowned center of excellence? Perhaps there are new approaches and immunotherapies that could be useful. Some of these renowned centers are conducting leading edge research using new approaches and therapies. Best of luck to you both! (HUGS)

raising2moredems

(706 posts)
6. MD Anderson as long as you pay before you see a doctor...
Sat Dec 2, 2023, 07:41 PM
Dec 2023

A friend's husband was treated there (a veteran no less) and pony up the cash was most important. Mayo is you best option.

Desert grandma

(1,053 posts)
7. MD Anderson and other centers of excellence
Sun Dec 3, 2023, 01:26 AM
Dec 2023

are on many insurance plans. If you are on regular original Medicare you should be able to choose MD Anderson or the Mayo clinic. I don't think either of them are in network with many, if any Advantage plans. Many employer based plans are in network with them as well. Best wishes to you and your wife.

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