Can't eat
Don't want to. I'd been on chemo for so long, I blamed the lack of appetite on the chemo (nearly 1.5 years this time around) and then on the final chemo (drug from hell, where I didn't eat for two weeks in a row) but now I'm temporarily off the chemo and only eat every couple of days at best - and even then usually a small portion. Anyone else experience that? I'm not even INTERESTED in eating - just no appetite. It affects my colostomy too, which I'm sure plays into it.
= new reply since forum marked as read
I can only say that husband said sometimes food was like eating a paper bag, but he knew he had to eat a little. That being said there are probably things that are easier to eat for each individual, hopefully you will find something you can stomach.
and I'm probably better letting someone who has been through the experience add their insight. I just remember my husband telling another patient that food tasted like a paper bag, but he knew he had to eat. This was when we were at the ACS Hope Lodge in NYC where we had a communal kitchen with other patients ... it was a bitter sweet scenario with aromas making one sick one day and then someone cooking french toast another day and him saying 'maybe I'll try that"
Try bland, but flavorful if that makes sense. French toast was a big breakthrough (and then they added bacon to our weekend breakfast) but the company in the kitchen did help.
Sending you positive thoughts and lots of hugs 
I'm really sorry and do not have any answers 
This is a road that nobody wants to travel and no one knows until they have been in your shoes. I do know someone who did have a colostomy 30+ years ago and still sees her surgeon from John Hopkins on occassion, although she did not have cancer. When she asked him a few years ago why he still makes time for a lunch with her when she is in the the neighborhood he replied 'because you are person who was closest to death and survived' She was at JH for 9+ months and is still here 30 plus years later. I can only wish that it offers a glimmer of hope to you.
and to be told years later that you were the worst patient who survived is not particularly encouraging ... except if it was told to you years later.
We never know where we fall on the 'survival spectrum' but we can hope to be one of the lucky ones and maybe bend the curve with our actions ... to be on the best part of the curve. Last week I read one of the studies presented at the recent ASH conference by the doctor's in my husband's transplant team. I can safely say that I know four, if not more, of the 100 + cases presented (some we lost touch with) in the study, two survived and two did not. Odds are 50% survival at 5 years, we just hope we beat the odds going forward and I hope you do as well.
As they say in the transplant world ... you want to be a boring patient
sorry you have not always followed that script
It is a journey that we take one step at a time. Obviously I only know that from a caregivers point of view, but I still take the small steps and it is hard to look too far into the future.
Sorry for the late reply, I do not check into the daily political theater as often as I did before ... too busy finding our footing for the next step.
Steroids or something might be prescribed to help you. I just hated that metallic taste...totally ruined Moon pies for me. 
Best wishes, Tab
No fun at all. Glad you've been able to start eating again. Your stomach shrunk, so it'll take time to stretch it out again.
