Rheumatiod Arthritis check in thread Please check in here and tell your RA story

[mdmc]

Last edited Tue May 7, 2024, 05:15 PM - Edit history (1)

Check in here and tell your story. It doesn't need to be your story. It could be someone's story that you know. I'd love to hear it.
https://rheumatoidarthritis.net/

[mdmc]

1. here is my story

I was diagnosed in 2006 when I was 35 years old. I had a couple of flair-ups where my shoulder or hip would lock up for no reason. I was a big stoner at the time and would simply smoke my way out of these painful flair-ups.

My mom has RA, and when I told her my symptoms, she told me I had RA. I went to my Rheumy, the great Dr. Mark Bele (Hudson Valley, NY) and he confirmed my diagnosis.

Dr. Bele was able to help me find the treatment that basically put my RA into remission for many years.

Fast forward, because I just can't recall every drug we tried before landing on weekly injections of Orencia. That was what put me into remission.

Now, I moved rather abruptly from the Hudson Valley to Myrtle Beach. I lost my insurance and Dr. Bele. I started over down here, but I was unable to get a new Rheumy right away.

Without Orencia, my RA flared up, and the uncontrollable pain and fatigue returned.

Right now, I am on steroids, waiting for treatment. I have returned to my self help tricks of napping, Epsom salt baths, swimming, and a tems unit to help the pain and fatigue.

I have hope that I can be in remission again.

[MOMFUDSKI]

2. Sorry to hear this. Why can't you just get back

on Orencia?

[mdmc]

4. hello!

I'm trying to
My insurance won't cover it.

[MFM008]

3. I tested positive for RA

And had the titer for it in the nuclear blood test but because I have atypical symptoms I guess they can't say I have it for sure so all I have is just a lot of pain all over.

[mdmc]

5. I went to urgent care and got steriods today

feeling very much better