Maine
Related: About this forumMaine boy was suffering nearly 200 seizures a day. Now he's gone 27 days without one.
DEDHAM, Maine Wyatt Beauchamp, 10, scrambled to the top of a pile of haystacks in his familys high-tunnel greenhouse Tuesday morning, a vantage point that gave him a good view of the excitable flock of chickens that live at his familys Lone Spruce Farm.
He wore a red plaid jacket and a baseball cap, and was confident and full of mischief as he swayed on the stacks, made designs in the frost on the greenhouse roof and threw a handful of hay down at his mother. All the while, Wyatt talked a mile a minute about remote controlled cars, his pet fish and his love of heavy machinery.
It was a very normal morning for a 10 year old. But for Wyatt, who has epilepsy and has struggled with debilitating seizures since just after his fourth birthday, normalcy felt remarkable. Not that long ago, he was enduring as many as 200 seizures a day.
That has changed for the better.
It has been 27 days since Wyatts last seizure nearly a month of what his mom, Kristin Beauchamp, is beginning to consider a remission and what for him has provided more opportunities to just be an energetic growing boy.
Read more: https://bangordailynews.com/2021/03/04/news/bangor/for-maine-boy-with-epilepsy-27-days-without-a-seizure-has-brought-hope/
patricia92243
(12,846 posts)my ad blocker for this site and still could not read it.
I have seizures ( completely controlled) and am really interested in this boy's story.
UpInArms
(51,821 posts)By November of that year, his seizures had diminished from 200 to approximately 50 a day. By late 2018, one year later, he stopped having drop seizures with their scary falls to the ground. Wyatt no longer had to wear his helmet.
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As the days with no seizures continue, its possible their miracle has finally arrived. But she doesnt want to count on that just yet. The seizures have stopped as mysteriously and suddenly as they began, and the family doesnt want to assume Wyatt has outgrown them and that the break will continue. For now, they are being careful not to change anything about his diet or medications, because something is working, though they dont know exactly what it is.
Its one day at a time, Kristin Beauchamp said. Its a little akin to walking on thin ice. But this swath of time has been the greatest gift. A wonderful break. Wonderful freedom.
patricia92243
(12,846 posts)druidity33
(6,568 posts)"They went to a new neurologist and said they had been told to look for certain key indicators of Doose Syndrome. In May 2017, the doctor found it. By July, Wyatt began a treatment regime under the guidance of his team at Massachusett General Hospitals Pediatric Epilepsy Program. It included medications and a medical-grade ketogenic diet in which all components must be weighed to the tenth of a gram."